What a surprise?!
It’s now been three months since I was diagnosed with a desmoid tumor in my right femur. In terms of medical treatment, so far I have done nothing. Absolutely nothing. I quite like this whole doing nothing approach if I’m honest. Especially when the recommended treatment path is chemotherapy. Low dose. But still chemo. Again.
But while I haven’t been treated medically, I have been enormously active on the holistic front. It’s now ALSO been three months since I completely overhauled my diet to focus on clean, whole, plant based food. At the same time I’ve also radically reduced my consumption of coffee, alcohol, sugar, gluten and soy. I am essentially trying to create a very alkaline environment in my body to kill off desi the natural way.
About four weeks ago I went off to get some more MRI scans. The whole process was kind of annoying. They booked me in for a Sunday and then I sat in the waiting room for 3 hours. The following day I got a call to say that they didn’t get a clear enough picture and they wanted me back in there again. More time in the pressure cooker! And more results.
Two weeks later I logged into the hospital website and noticed my MRI records were there. After some digging I was surprised to see the size of my tumor looked slightly smaller. Naturally I assumed I had single handedly found the cure. I went back to see my Oncologist, to continue treatment conversations but really wanted to explore the new MRI findings. Instead of clapping he told me I was likely just seeing two different readings due to different radiologists. But he did say, he agreed we shouldn’t rush to start treatment given I am in no pain and the tumor doesn’t appear to be growing.
After discussing my holiday schedule we collectively at that point delayed my likely medication start date to late January. Which is now in two weeks time. I have continued to feel very well. I have no pain. So I don’t suppose it’s very hard to understand why I am so reluctant to start chemotherapy drugs.
In late breaking news I just checked the website again and there was an update. After my last appointment I took my original scans in so they could have one radiologist look at both sets. I finally have the results. Apparently there was no visible change in size. I’m a little deflated, but not too much. Des definitely doesn’t look or feel smaller to me. But Des isn’t growing either and that’s a good thing I think.
So that’s where I’m at. Watch this space. Let’s see if the recommendation in two weeks time is more wait and see OR starting a chemo trial.